Sunday, September 23, 2007

Scram? No Way. We Need Voices of Reason.

Ridor attacked me on his blog and here is my response as follows:

Ridor:
"Now let’s focus on Jamie Berke, she cried a massive river last summer when the Deaf Bilingual Coalition staged a peaceful demonstration at the Crystal Gateway Marriott Hotel in Arlington, Virginia."

Me:
>>>Let's get one thing straight. This was NOT a "peaceful demonstration." Peaceful yes, demonstration, no. It was a protest and clearly referred to as such by certain bloggers. I was trying to warn the deaf community that protesting against an individual organization might backfire. It might make the members of that organization defensive and protective of their organization. A general effort to get the word out that if hearing babies are encouraged to sign, deaf babies should be, too, is more effective.

Ridor:
"And honey, now it backfired in your face. See what we meant all along? We were right. You are so wrong as usual. Your complacency prompts them to tramp us all once again. "

Me:
>>Again, I was trying to make the point that the deaf community should explore alternatives to protesting against AG Bell, for getting their perspective across. Things like the International Sign Language day marches - excellent idea! Great way to increase awareness of sign language and its benefits without attacking any particular organization. Hopefully that will generate some much-needed positive publicity in the media about sign language.Like many of you, I am concerned for the future of the signing deaf community, which I see shrinking rapidly as the next generation largely goes the oral route because of cochlear implants. (I have recently heard that the total communication deaf center program my deaf kids graduated from, is down to about 30 kids altogether from pre-school through 6th grade, while the oral deaf center program reportedly has over 200 kids) Where are the signing deaf people of the future going to come from?

Like many of you, I am doing some deep soul searching, trying to come to terms with the new reality for a deaf community that is undergoing rapid change. I may not like the implantation of deaf babies, but as I learn more facts, I understand why it is being done. Quite simply, cochlear implants work differently from hearing aids. The actually work better because a cochlear implant can bypass the bad part of the ear and a hearing aid can not. So I was partially right in an earlier post where I said hearing aids were not good enough - they will NEVER be as good as cochlear implants.

So what is the best course of action for us older deaf people, to ensure that there is a future signing generation to replace us? So far, it seems to be:

a. Embrace the few parents of implantees who decide to use sign language along with cochlear implants. Right now these parents are very few. If we embrace them, maybe some of them will become advocates for the bilingual method.

Here are some CI parent blogs where the parents embrace the use of sign language. These are the only ones I know of so far where the parents are embracing bilingualism. Link to these blogs, increase awareness of them. They are an important tool in the deaf community's advocacy toolkit.
  1. Ethan's World - search for blog posts on sign language
  2. Issac's World - search for blog posts on sign language
  3. Moot Thoughts and Musings - search for blog posts on sign language
Only three! They are FAR outnumbered by the ones who are raising their children only orally, with the auditory verbal method.

b. Attack the media, as we are beginning to do in the case of articles like the Chicago Tribune. The media must be made aware of their bias and journalistic obligation to present a balanced picture. For every successful pure oral cochlear implantee mentioned in an article, there should be a successful bilingual cochlear implantee mentioned.

c. Work hard to make the parents of implantees understand that although their children can hear and function like hearing children, they are deaf children with implants. Just like the earlier generation of orally raised deaf children could hear with hearing aids, but was still deaf.

I grew up oral. Why is sign language important to me now? It is important to me because:

1. It was the key to friendships for me in college
2. It filled in the communication gaps for me at first. As I lost more hearing, I became more dependent on sign language. I will continue to use sign language even if I get a CI.
3. It is an essential part of deaf culture, and therefore, a person's culturally deaf identity. Finding my identity as a deaf person in college, felt like "coming home."
4. It is the native language of my deaf children. (The other day I asked the younger one if he would like an implant. He screamed at me in ASL, "no way! I prefer deaf!" I asked again, "but don't you want to be able to hear music? voices?" Again he screamed, "no way! I prefer deaf!" Yet his feelings and preferences can not be compared to those of an implanted deaf baby growing up, because all the implanted deaf baby knows is sound, while my child only knows silence.)

Ridor:
"Maybe the deaf folks in the region (Wisconsin, Illinois, Indiana and Michigan) can stage a demonstration at the oral school and distribute the wooden rulers as a reminder of their method to oppress Deaf people by bashing their hands with wooden rulers as they did for the last 100 years!"

Me:
>>No, I am against this idea because it focuses on the past. I strongly doubt that they are doing any "punishment" of this type in today's oral schools for the deaf even if sign language is forbidden there. If we try to portray oralism as "oppressing" deaf children at the same time that parents of CI kids are declaring that they are giving their children "opportunities," this tactic could backfire.

Ridor:
"Jamie, your ideas of unification between us and them fell … on deaf ears, literally and figuratively! Now scram away!"

Me:
>> I still encourage some form of unification. If not on cochlear implants, then on other issues like technology and accessibility.

I am not going to scram away. We need open, honest, cordial discussion and debate on the issues, and cochlear implantation is certainly presenting the deaf community with issues and challenges. We need voices of reason to balance the passioned thoughts being expressed by culturally deaf people.

As has been discussed before, some of the kids growing up implanted *may* cross over to the deaf community as adults, but many if not most, probably won't. How is the National Association of the Deaf going to survive? How are total communication center programs for the deaf going to survive? How are signing schools for the deaf going to survive (the trend is for them to close and become outreach centers)? How will Gallaudet University avoid the need for more layoffs beyond what has already been announced? How will the National Technical Institute for the Deaf keep up its enrollment? How are deaf social events going to survive? At the ASL dinners I go to, I have started to see some cochlear implantees, but so far it is only deaf adults with implants - no parents have brought their implanted deaf children yet.

Last but not least, Ridor, stop calling me "honey." If you must attack me publicly, just call me Jamie - nothing else. Otherwise, I might come up with a few choice names for you. I already have one in mind, but if I posted it here, it might violate DeafRead's guidelines (item 8: We will not post anything that is an attack on a specific race, gender, ethnicity, sexual orienation, age or religion).

15 comments:

mishkazena said...

It was a social awareness event. The word protest was used erroneously. All the members did was wear t shirts and handed out educational leaflets. That doesn't sound like a protest, not in the traditional sense.

Anonymous said...

would like to see item #8. Please
show it. Thank you.

Dianrez said...

You go, girl! We need a strong moderate voice to balance those of the radicals and those of the too-conservative. Perhaps this is the voice that the Hearing community will listen to most thoughtfully, so we need to be careful to bring them in. Meanwhile, I am sitting here in the front row, cheering you on and munching popcorn. Ridor, fling your worst, this one "honey" ain't moving.

RLM said...

Oh boy! I sometimes enjoy online catfights. Kinda fun!

"Honey" could apply to anyone regardless of gender. I don't see anything on the DeafRead guideline ban any dishonorable mention of foods like honey.

Come on, Ridor is usually political incorrect. That's why many people find him to be refreshing!

Simply ignore Ridor's labels. You and McConnell make a big deal out of Ridor's combative language usage. What do you expect from the rhino like Ridor? Everyone know better not to rile up the rhino creature much further.

You have some good points anyway about various issues.

Robert L. Mason (RLM)

Anonymous said...

Three cheers for you, Jamie!! I find you refreshing, independent and unique while I find Ricky Taylor alias Tidor dreadfully boring and a "broken record" I don't read his blogs since his credibility was shaky... Keep up your work!

Squ65 said...

Jamie -- stay away from that guy you know who. Calling Honey in a negative way of saying and it is unacceptable and sarcasm to every woman. I know you from Gallaudet. We lived on the first floor of Cogswell in our freshman year. I remember you were pretty sensitive. Well so am I. Go girl! Be Strong .....

Mike McConnell said...

Jamie, you have the right sense in mind. Keep it up with the good work. We do need "voices of reason" and not "voices of insanity."

Patty said...

I love your moderate voice, too and thanks to you and others, I've learned to embrace every aspect, both old and new, of our culture. Like dianrez, I'm cheering you on! *hugs*

Jeannette said...

Jamie, Thanks for the link. Probably a better link would be the category "Ellis's ears" instead of the search "sign language" http://covblogs.com/diber/archives/cat_elliss_ears.html

I think your moderate approach is something that is definitely more palatable to hearing parents. For us, we are committed enough to the use of sign language no matter if the entire deaf community hates us. It would make it a little more difficult since it's a communal language, but we are very firm and committed.

Other parents whose first exposure to the deaf community (because they were erroneously left ignorant by those who advised them) is getting attacked for implanting their child? Well, I do my best to explain some of the background and to encourage them to be forgiving, but it's kind of difficult to say "sign language rocks! raising your kid aware of his deafness rocks!" when all they get is vitriol from the few people who have less mediated emotions. Know what I mean?

Jnet of Moot Thoughts and Musings

So thanks for the words.

Jodi said...

Jamie,

We have a daughter who is 6 and deaf and uses a hearing aid and a CI. She was adopted just prior to age 5, and she came to us with little to no language. Sign was introduced first and we have continued using both sign and speech. She is now pushing fluency in English, but her sign is also quite good, though even she signs in English word order because that is how she "thinks".

We are now adopting another deaf child who will be coming to us just before turning 3. We will be using nothing but sign for some time with her, though we fully intend on providing her with a cochlear implant, presuming she is a candidate. If she can have access to sound, it only makes sense to provide that for her. But she needs language more than she needs to speak, so she will be given free and abundant access to sign language. We have had to go against the so-called experts and have no regrets. Sign seems to make learning spoken English so much easier for these kids.

I think there are far more than just 3 blogs representing families who have chosen bilingual approaches for their deaf children. Get the word out that you're looking, and I'm sure you'll learn of more. A large percentage of the families who have adopted deaf children, regardless of whether or not the parents are hearing or deaf, have opted for bilingual approaches for their children, and there are quite a few of us, though I don't know how many have blogs.

But as you seem to be aware, the reality is that once deaf children have access to sound and speech, it seems to be human nature to want to speak to communicate. We couldn't have stopped our daughter from becoming a speaker if we'd wanted to. She wanted to talk and there was no other way to perceive it. We opted for the CI when this was her clear choice. The CI just made it easier for her because she could hear ALL the sounds and not just some of them.

Thanks for your blog. Mine is here: http://speakshermind.redmonk.net and I do blog about these issues from time to time but not exclusively.

Respectfully,
Jodi

Emily said...

Just wanted to say that we use AVT and incorporate sign language in our son's life as well. I'm not sure that we go far enough to be considered a "bilingual" approach, but we do try to incorporate sign as much as possible. Noah is legally blind in addition to deaf, so he really struggles to learn signs. We wanted him to be familiar with the language of deaf culture, though, so we keep working. Thanks for a more moderate voice from the deaf community. We really appreciate not being shunned simply because we have given our child access to sound.

Karen Mayes said...

Yup, I like that way you approach the deaf blogsphere. We need a balance... too much ASL attitude lately. I did say it often before and I am saying it again... ASL is not for everyone... even not all deaf people benefit from ASL. Some smart hearing and deaf people know this too.

Ridor is not a bad guy... no I have never met him, and he has his own opinions. It is a matter of respect...

Anonymous said...

Since over 90$% of deaf children are born to hearing parents, it is very likely that most of those who are profoundly deaf would receive CI so that they could develop a spoken language with their own hearing families, neighbors, local school classmates, etc.

It s possible that the signing Deaf community is getting smaller in the future. That kind of worries me, too since I have a deaf child. Hearing aids never benefited my child. We had to research other options including CI and decided to give the child a CI. Our child is very happy with it and has benefited immensely from it as she could hear nearly like her hearing peers. She has been using ASL since she was an infant and we wanted to give her an opportunity to develop a spoken language with CI. She can always stop using it later if she doesn't like it but I doubt.

Most Deaf parents don't give CI to their young deaf children and those children from deaf families would probably become a majority of the Deaf community in the future while deaf children from hearing families may not participate in the Deaf community and may form their own "oral" community. In fact, there is already a community for CI children where they get together at summer camps. It s probably growing larger every year.

I support ASL for deaf children with or without CI but most hearing parents choose oralism as the CI does help deaf children hear much better than hearing aids and makes it a lot easier for them to learn a spoken language unlike old fashioned oralism in the past. Thanks for bringing this up with a voice of reason.

RSGeo-007 said...

Came across this earlier, a blog in Denmark;

DEAF YOUTH INVADE AUDIOLOGY CLINIC: A NON VIOLENT PROTEST IN DENMARK

http://mameha22.blogspot.com/2007/05/deaf-youth-invade-audiology-clinic-non.html

Anonymous said...

Just want to say how sensible you are and how much I respect you. Thank you for your blog Berke Outspoken!